Meet Diego

What has your journey with Duchenne been like?

Leslie Guzman, Diego’s mom

We’re originally from Mexico. I’m a single mom, so it’s not just dealing with Diego’s Duchenne that’s been difficult. Diego being diagnosed with Duchenne changed everything. Our lives were completely transformed, and I’ve had to adjust my aspirations to make sure my priorities align with where my love is.

Before moving to the U.S., we went through a one-and-a-half-year journey of trying to get Diego diagnosed, but it seemed impossible – they didn’t know what he had. I was fortunate to be able to travel to Cincinnati for work, and I was able to get Diego diagnosed there. We live in the U.S. now because I wanted Diego to have access to treatments like VILTEPSO.

Has Diego having Duchenne changed your perspective?

Leslie Guzman, Diego’s mom

It puts everything into perspective. You realize that what really matters is not necessarily what you thought matters. For instance, I had a big sinkhole in my backyard, and people said, “Oh, my gosh. How do you go through that? How do you survive?” And I was like, “Look, if that was the biggest problem in my life, that would be golden!”

Diego having Duchenne made me much more aware of the hardships some people have, and I’ve learned to see the silver linings in things. So, this has really inspired me to help others.

What are some fun things you like to do?

Diego Guzman

I don’t like staying at home as I prefer doing activities outdoors or around the city, such as going to concerts or sporting events at my high school. And recently, I went to Cancun with my friends for senior spring break.

Throughout high school, I’ve been involved in plays and musicals, like Mamma Mia and Grease. This is something I really enjoy. And when I’m home, I enjoy playing the piano. I’ve been playing piano ever since I was about four. Some songs I like to play are “Clocks” and “The River Flows in You.” Those songs bring me happiness and joy.

In the past, I was able to walk and do more things. Now, when I’m home, I enjoy playing music and cooking with my family. I also do graphic design in my free time. And on the weekends, I like to hang out with my friends and be social.

Explore some of our other VILTEPSO Heroes

*These stories describe unique experiences with VILTEPSO and are not intended to represent the average individual’s response. Individual patient results with VILTEPSO may vary.